What is haemophilia B?

Haemophilia B is a condition present from birth which affects the ability of the blood to clot. It means that you do not have enough of a protein called clotting factor IX (factor nine) in your blood.1

Haemophilia B has 3 levels of severity – mild, moderate and severe.1 It is important to know the level because treatment depends on the severity of the condition.

How does haemophilia B affect me?

Having haemophilia B means you are more likely to bleed from an injury (through falling, or taking a hard knock, for example), but bleeding can also sometimes happen for no apparent reason.1

Bleeding often happens inside the body, where you can’t see it (in places like the knees, ankles and elbows).1

If you sustain an injury externally, it may mean excessive bleeding.1

There is no cure for haemophilia B, but with the right care and treatment, you can still lead a full and active life.

Managing haemophilia B

Living with haemophilia B

Haemophilia B can be challenging to live with. In addition to the emotional impact, there are a number of practical issues that you need to adapt to. However, with the right treatment, haemophilia doesn’t need to limit your life or future.