The following questions and answers do not replace advice from your doctor.

Haemophilia B is a condition present from birth which affects the ability of the blood to clot. It means that you do not have enough of a protein called clotting factor IX (factor nine) in your blood.1

It is a rare condition affecting about one in every 50,000 males.2

The main symptoms are:2

  • a tendency to bruise easily especially in early childhood
  • excessive bleeding from cuts that can take a long time to stop
  • a tendency to bleed into joints and muscles causing pain, swelling and limitation of movement

Yes. Haemophilia B is either mild, moderate or severe, depending on the level of clotting factor IX in the blood.2

Haemophilia A is caused by a deficiency in clotting factor VIII (factor 8), whereas haemophilia B is caused by a deficiency in clotting factor IX (factor 9).2,3 Haemophilia B is less common than haemophilia A, affecting around 20% of people with haemophilia.2

An inhibitor is an antibody that can develop and prevent factor replacement treatment working, making bleeding episodes more difficult to treat.4

The Haemophilia Society is a UK-wide charity for all those affected by bleeding disorders.

There is no cure for haemophilia B, but with the right care and treatment, you can still lead a full and active life.

Idelvion is a pale yellow to white powder. The reconstituted solution should be clear or slightly opalescent, yellow to colourless in appearance.

It should be stored at room temperature (2–25°C). Do not store above 25°C. Do not freeze. Keep vials in the outer carton in order to protect from light.

  • The product should be used before the expiry date on the carton
  • After reconstitution the product should be stored immediately and not stored for future use