For patients who have been prescribed Idelvion

Idelvion is for the treatment of haemophilia B for both adults and children.1

It contains clotting factor nine (the factor that is missing from or reduced in your blood).1-4 This protein will help your blood to clot and can therefore prevent and treat bleeding episodes in haemophilia B.1

Your haemophilia care team will show you how to administer your medicine properly.

There are a number of things, including age and level of physical activity, among others, that will determine the number of days between injections. Your haemophilia care team will discuss with you the treatment dose and frequency that is right for you. It is likely that when you are first prescribed Idelvion, you will be asked to have some additional blood tests to determine what is best for you.

If you have any questions about your treatment, always ask advice from your haemophilia care team.

  • Idelvion does not need to be stored in a refrigerator. Idelvion should be stored at room temperature (2–25°C). Do not store above 25°C. Do not freeze. Keep vials in the outer carton in order to protect from light.
  • The product should be used before the expiry date on the carton.
  • After reconstitution the product should be used immediately and not stored for future use.

Are there any side effects?

Like all medicines, Idelvion can cause side effects, although not everybody gets them. Of the side effects that patients reported, the most common were injection site reactions, headaches and dizziness.1

If you are concerned about any reactions or possible side effects, contact your haemophilia care team immediately. This includes any possible side effects not listed in the package leaflet. Please read the ‘possible side effects’ section of the package leaflet carefully. For reporting side effects, see the information at the bottom of this page.

Allergic reactions may occur with this medicine. Please stop using this medicine immediately and contact your haemophilia care team if you have any of the following symptoms: dizziness, wheeziness, low blood pressure, difficulty breathing, chest tightness, swelling of the face, rash or hives.

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Reporting of side effects

If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the package leaflet. You can also report side effects directly via the Yellow Card Scheme at https://yellowcard.mhra.gov.uk. By reporting side effects you can help provide more information on the safety of this medicine.